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The costs of caregivers for children with disabilities that participate in centre-based and home-based community-based rehabilitation (CBR) programmes in the East Coast of Malaysia.

Hasan, Haliza and Syed Junid, Syed Mohamed Al Junid and Muhammad Nur, Amrizal (2019) The costs of caregivers for children with disabilities that participate in centre-based and home-based community-based rehabilitation (CBR) programmes in the East Coast of Malaysia. Intellectual Discourse, 27 (Special issues on disabilities). pp. 945-963. ISSN 0128-4878 E-ISSN 2289-5639

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Abstract

Rehabilitation for disabled children requires long-term programmes which are expensive to the family. This study aimed to estimate the cost incurred by caregivers’ children with disabilities from Pahang, Terengganu and Kelantan participating in Community-Based ehabilitation (CBR) (CentreBased and Home-Based) and cost of seeking alternative rehabilitation. Cost analysis using the Activity-Based Costing (ABC) method was used to estimate twelve-months’ expenditure in 2014 institutional year on 297 caregivers of children with disability, aged 0 to 18 years who attended CBR. Data were collected using a self-administered costing questionnaire and presented in median (IQR). Results showed that the median direct and indirect costs, excluding medications and alternative care were nearly four times as high in Home-Based compared to Centre-Based (RM2, 376 (11,228) vs. RM608 (739) (p = <0.001). Both groups of caregivers spent a significant amount of resources on alternative rehabilitation. The high costs incurred for alternative rehabilitation is a major economic burden to the family.

Item Type: Article (Journal)
Additional Information: 5000/77726
Uncontrolled Keywords: Caregiver cost, direct cost, indirect cost, community-based rehabilitation, alternative rehabilitation, disabled children.
Subjects: H Social Sciences > H Social Sciences (General)
H Social Sciences > HT Communities. Classes. Races
R Medicine > RA Public aspects of medicine > RA643 Communicable Diseases and Public Health
Kulliyyahs/Centres/Divisions/Institutes (Can select more than one option. Press CONTROL button): Kulliyyah of Nursing > Department of Special Care Nursing
Kulliyyah of Nursing
Depositing User: DR HALIZA HASAN
Date Deposited: 21 Jan 2020 15:59
Last Modified: 30 Mar 2020 14:44
URI: http://irep.iium.edu.my/id/eprint/77726

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