Navigating the journey: lived experiences of parents raising children with dyslexia in Malaysia

Abd Karim, Aishah Hanim and Muhammad, Nurulaamal and Kassim, Siti Kholijah and Rais, Haniza and Ismail, Nik Ahmad Hisham (2026) Navigating the journey: lived experiences of parents raising children with dyslexia in Malaysia. Journal of Nusantara Studies, 11 (2). pp. 37-54. ISSN 0127-9319 E-ISSN 0127-9386

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Abstract

Dyslexia is one of the most common learning disorders affecting children’s academic and emotional development. In Malaysia, parents of dyslexic children often face multiple challenges due to limited awareness, inadequate institutional support, and societal stigma. This study aims to explore the lived experiences of parents raising children with dyslexia, focusing on the emotional, educational, and developmental challenges they encounter. Guided by Bronfenbrenner’s Ecological Systems Theory, a qualitative case study design was employed, involving five Malaysian parents of children formally diagnosed with severe dyslexia. Data were collected through semi-structured interviews and analyzed thematically following Braun and Clarke’s (2006) six-phase framework. Five major themes emerged: (1) Initial Reactions and Delayed Recognition, (2) Emotional and Psychological Burdens, (3) Financial and Institutional Barriers, (4) Educational Challenges, and (5) Child Developmental Profile. Parents reported emotional fatigue, financial strain, limited school support, and diagnostic confusion. The findings highlight the urgent need for early screening, affordable intervention programs, and comprehensive teacher training on dyslexia. They also underscore the importance of collaborative partnerships between parents, educators, and policymakers to foster inclusive educational practices. The study contributes to the limited Malaysian literature by offering culturally grounded insights into parental experiences and emphasizing the role of empathy, awareness, and policy reform in supporting dyslexic learners.

Item Type:	Article (Journal)
Uncontrolled Keywords:	Parental experiences, dyslexia, parental challenges, inclusive education, Malaysia
Subjects:	L Education > LB Theory and practice of education > LB1050.9 Educational psychology
Kulliyyahs/Centres/Divisions/Institutes (Can select more than one option. Press CONTROL button):	Kulliyyah of Education > Department of Educational Psychology & Counseling
Depositing User:	Dr Aishah Hanim Abd Karim
Date Deposited:	07 Aug 2026 09:37
Last Update:	07 Aug 2026 09:38
Queue Number:	2026-08-Q4515
URI:	http://irep.iium.edu.my/id/eprint/130512

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