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The validation of questionnaire on end‑of‑life care knowledge, perceptions, and preferences among end‑stage renal disease patients on hemodialysis

Rozi, Nur Raziana and Wan Ali, Wan Ahmad Syahril Rozli and Draman, Che Rosle and Pasi, Hafizah (2021) The validation of questionnaire on end‑of‑life care knowledge, perceptions, and preferences among end‑stage renal disease patients on hemodialysis. Indian Journal of Palliative Care (IJPC), 27 (1). pp. 99-103. ISSN 0973-1075 E-ISSN 1998-3735

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Abstract

Introduction: End-of-life care issues for end-stage renal disease (ESRD) patients are still not fully highlighted in trials and clinical practice. Due to the inadequacy, exploring patients’ knowledge, perceptions, and preferences is essential to improve the delivery of care. This was performed using questionnaires which have been a widely useful tool in medical researches. Up to date, there was no published, validated questionnaire developed in Malaysia for such purposes yet. Objective: This study aimed to develop and validate the questionnaire on endof-life care knowledge, perceptions, and preferences among hemodialysis (HD) patients. Subject and Methods: A cross-sectional study was conducted among 92 HD patients from 14 centers. It involved four phases including (i) developing the questionnaire and pretesting, (ii) improving and editing and redistribution to respondents for the pilot study, (iii) factor analysis (FA), and (iv) internal consistency reliability testing. Results: The result of FA with varimax rotation performed identified three domains for the 41 items, with 10–20 items in each domain. All the 41 analyzed items had a good factor loading of more than 0.4 with the lowest value of 0.421 and were nicely fit into three respective domains: knowledge, perceptions, and preferences. Internal consistency reliability analysis Cronbach’s α values were between 0.5 and 0.7 for all domains, higher than the level set for this study (0.5). Conclusion: The questionnaire was successfully validated and considered a useful tool in describing ESRD patients’ end-of-life care knowledge, perceptions, and preferences.

Item Type: Article (Journal)
Additional Information: 7534/88547
Uncontrolled Keywords: End of life, end‑stage renal disease, questionnaire, validation
Subjects: R Medicine > RA Public aspects of medicine > RA966 Medical Centers. Hospitals. Dispensaries. Clinics
R Medicine > RC Internal medicine
R Medicine > RC Internal medicine > RC82 Medical Emergencies, Critical Care, Intensive Care, First Aid
Kulliyyahs/Centres/Divisions/Institutes (Can select more than one option. Press CONTROL button): Kulliyyah of Medicine
Kulliyyah of Medicine > Department of Community Medicine (Effective: 1st January 2011)
Kulliyyah of Medicine > Department of Internal Medicine
Depositing User: nur hakimah a manan
Date Deposited: 23 Feb 2021 10:40
Last Modified: 23 Feb 2021 10:40
URI: http://irep.iium.edu.my/id/eprint/88547

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