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Palliative care for disease with uncertain disease trajectory: an ethical case learning

Taib, Fahisham and Fatima, Eisha and Abdullahi Faruk, Jamil and Syed Abd Hamid, Syed Abdul Khaliq (2019) Palliative care for disease with uncertain disease trajectory: an ethical case learning. Education in Medicine Journal, 11 (1). pp. 53-57. ISSN 2180-1932

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Abstract

Disease trajectory in children can be difficult to determine. This is primarily, despite the life limiting condition, healthcare professionals are unable to pin the exact time when these children’s lives will end. We illustrate an unusual case of dicephalic parapagus, an inseparable conjoined twin which was complicated by anomalies, psychosocial and safeguarding issues. Such case posed a challenge even to paediatric palliative care team as the trajectory of the disease, in this case, is rather difficult to predict. Anticipatory symptoms management perhaps is the best way forward, despite having to face many ethical challenges and medical enigma.

Item Type: Article (Journal)
Additional Information: 6261/87512
Uncontrolled Keywords: Palliative care, Conjoined twin, Disease trajectory, Psychosocial
Subjects: R Medicine > RJ Pediatrics
R Medicine > RJ Pediatrics > RJ101 Child Health. Child health services
Kulliyyahs/Centres/Divisions/Institutes (Can select more than one option. Press CONTROL button): Kulliyyah of Medicine
Kulliyyah of Medicine > Department of Paediatrics
Depositing User: Dr Syed Abdul Khaliq Syed Abd Hamid
Date Deposited: 07 Jan 2021 12:29
Last Modified: 07 Jan 2021 12:31
URI: http://irep.iium.edu.my/id/eprint/87512

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