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Genetic screening of newborns in Malaysia: an ethico-legal prognosis

Zawawi, Majdah and Abdul Ghani Azmi, Ida Madieha (2014) Genetic screening of newborns in Malaysia: an ethico-legal prognosis. International Journal of Law, Policy and The Family (28). pp. 135-149.

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Abstract

Genetic screening of newborns is not a cure in itself, but it is an important tool for physician to diagnose a genetic disease or disorder. It also provides hope for parents of children with these rare diseases for treatment or at least some advice as to how to help these children grow in a more comfortable environment. This article argues that any jurisdiction wishing to introduce a specific genetic screening programme which makes it compulsory for parents of newborn children to submit their children for genetic testing must address the issue of informed consent of the parents, the type of tests that would be carried out and the treatment of the genetic information that has been obtained. Malaysia is used as an example of how these factors might be reflected in the law.

Item Type: Article (Journal)
Additional Information: 2421/37658
Uncontrolled Keywords: Genetic screening, newborns, Malaysia, ethico-legal prognosis
Subjects: K Law > KPG Malaysia
Kulliyyahs/Centres/Divisions/Institutes (Can select more than one option. Press CONTROL button): Ahmad Ibrahim Kulliyyah of Laws
Depositing User: Majdah Zawawi
Date Deposited: 12 Aug 2014 09:00
Last Modified: 12 Aug 2014 09:00
URI: http://irep.iium.edu.my/id/eprint/37658

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