“His tongue seems shorter”: experiences of caregivers of managing communication with people with Parkinson disease in Malaysia

Altaher, Abeer Muneer and Chu, Shin Ying and Tan, Joo Siang and Sathiyasenan, Sai Tarishini and Hersh, Deborah and Mustaffa Kamal, Rahayu (2023) “His tongue seems shorter”: experiences of caregivers of managing communication with people with Parkinson disease in Malaysia. Topics in Geriatric Rehabilitation, 39 (3). pp. 203-211. ISSN 0882-7524 E-ISSN 1550-2414

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Abstract

This qualitative study explored Malaysian caregivers’ experiences when caring for people with Parkinson disease (PD). Semistructured interviews (n = 10) were conducted, transcribed verbatim, and analyzed using thematic analysis. Four major themes and 9 subthemes emerged from the challenges faced by these caregivers. The 4 themes were “communication challenges,” “coping with communication challenges,” “becoming more dependent,” and “reduction in social participation.” Caregivers often demonstrated poor knowledge of PD and reported communication, physical, and psychosocial impacts affecting both them and the person with PD. To ensure the well-being of both caregivers and dependents with PD, the communication and social participation needs of caregivers and dependents should be considered during assessment and the planning of intervention

Item Type:	Article (Journal)
Uncontrolled Keywords:	caregiver, experience, impact, interviews, Parkinson disease
Subjects:	R Medicine > RA Public aspects of medicine
Kulliyyahs/Centres/Divisions/Institutes (Can select more than one option. Press CONTROL button):	Kulliyyah of Allied Health Sciences Kulliyyah of Allied Health Sciences > Department of Audiology and Speech-Language Pathology
Depositing User:	Dr Rahayu Mustaffa Kamal
Date Deposited:	03 Jan 2024 14:46
Last Modified:	03 Jan 2024 14:51
URI:	http://irep.iium.edu.my/id/eprint/109546

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